Since its been so long since I’ve written, a little “catch up” post seems in order. Jed and Zac have both been in Occupational Therapy for their Sensory Processing Disorders for most of the year. The benefits have been amazing! My children are blooming, and I couldn’t be more thrilled. … Continue reading →
So far 2016 has made me yearn with longing for the return of 2015. And 2015 was a really rough year for us. Go, 2016! The sad part is, the New Year started off great! I had to work that weekend, but I picked up a nifty 30+ hour layover … Continue reading →
Thanksgiving did turn out to be delayed for us; Darrel was still feeling miserable from his sickness so we postponed our family gathering. Based on how Darrel felt, we really should have waited even longer, but he thought he would feel well enough to have Thanksgiving on Friday so we … Continue reading →
Thanksgiving is upon us again, and I honestly have nothing new to share this year. At least Jed and I have picked up a small dose of the cooties Darrel has now, so it’s very possible Thanksgiving for our family won’t happen this Thursday. My parents would rather we not bring … Continue reading →
The terrible spinach reaction was Sunday night, and on Wednesday I was scheduled to return to work for a really difficult 3 day assignment. I still felt sore and achy and NOT my best, but I wasn’t bad enough I felt calling in sick was an option. Besides, thanks to vacation in … Continue reading →
This. Is getting. Ridiculous. Last month, we all got sick after our Chicago trip. Jed and Darrel bounced back quickly, but Zac and I had a harder time recovering. We had barely begun feeling better when, about three weeks ago, we all got the stomach bug. Seriously? Apparently, every Fall … Continue reading →
On August 8, 2015, I celebrated three years on a TED (Total Elimination Diet). If you had told me my TED would last three years back in August of 2012, I wouldn’t have believed you. If I did finally believe you, I would have curled up in a ball and cried. Nonetheless, … Continue reading →
Last week was brutal. I’m feeling very off my game right now, so this might not be the best writing I’ve ever done. Still, I wanted to give an update on the tomato trial, since I announced it last week. The tomato trial never happened. Zac helped us pick out tomatos … Continue reading →
It’s been a long couple of weeks. We’ve been busily trying to get the homeschool classroom put together, since Jed has announced that he can only go to school IN a classroom. (Love opinionated kiddos!) Really our classroom is just half of our office cleaned out and dedicated to school … Continue reading →
If you follow my Facebook page, you’ll know where I’ve been the last two weeks. On vacation! Sort of. June is pretty jam-packed for our family; my birthday, Jed’s birthday, Zac’s birthday, and Father’s Day all hit at once. We have a double birthday party for the boys in June … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!