FPIES Angels

It’s a common complaint in the food allergy world: people don’t get it. They don’t understand, they don’t help, they don’t care. That is true in a lot of cases, but one of the greatest joys of food allergic living is when you encounter the opposite. You’re going about your … Continue reading

After the Egg Break

My poor little boys had a mildly  rough time last week. Because of the egg trial, I’ve been even more paranoid than normal about keeping the floors in my kitchen and dining room cleaned. If Zac gets a crumb, it’s not good…but if Jed gets a bit of egg, it’s … Continue reading

How to Help FPIES Families Without Giving A Dime

Before I get started with today’s post, I have a small update on Zac. When I shared the wonderful success of the egg trial, I gave a great big shout-out to the fact that we haven’t had any accidental ingestions through the whole first week. I spoke too soon. Yesterday … Continue reading

The Egg Trial Begins

Tuesday I picked up a dozen eggs from my parents. Yesterday morning I cooked the first egg that’s been cooked in our house in over a year. I was trying to make a custard-type egg dish for Zac, for a few reasons. For starters, it would be a relatively new … Continue reading

Shelving Sunflower

Would you like to take a trip into an FPIES parents brain for a bit? Good. Then let me share with you what Darrel and I have been thinking and doing the last few days. We started Zac on sunflower products Thursday a week ago. We’ve been using Spectrum sunflower oil … Continue reading

How to Make Sunbutter From Scratch

And I do mean from scratch! I’m talking raw seeds to creamy sunbutter here. For those of you just joining me on this journey, let me fill you in on why I’m going through this ordeal. My son, Zac, is severely reactive to corn and soy. I have hunted and … Continue reading

How Living With A Rare Disease Kept Me From Participating in Rare Disease Day 2014

Today is Rare Disease Day. It’s kind of a big deal in my circles; a day to raise awareness for all people who live with a condition that is little known and little understood. I had some plans, y’all! There were things I was going to do today to celebrate … Continue reading