February was a dark time for me. The diagnosis of Autism really rocked my world. Not Jed’s diagnosis, but my unofficial diagnosis. Maybe that sounds strange, but it’s undeniable that I accepted Jed 100% as-is and had no fear whatsoever about his future, while simultaneously struggling to accept the same diagnosis … Continue reading →
I hope you all had a really excellent Christmas! It’s almost the end of 2015, and I figured it would be good to do a little “year end recap” and update. For starters, I’ve been rather quiet on the blog front lately, but that’s actually because I’ve been writing furiously … Continue reading →
It’s been a rough few weeks. In fact, there’s been so much happening that I can’t fit it all in one post, so this will be a nifty “ongoing storyline”. To begin, we do have some exciting news! October 30th, I arrived home from work in the early afternoon. As soon as I … Continue reading →
This. Is getting. Ridiculous. Last month, we all got sick after our Chicago trip. Jed and Darrel bounced back quickly, but Zac and I had a harder time recovering. We had barely begun feeling better when, about three weeks ago, we all got the stomach bug. Seriously? Apparently, every Fall … Continue reading →
We’ve been in a bit of a holding pattern the last month. Sickness ALWAYS throws our plans to the wind. After our trip to Chicago, the boys caught whatever cooties I came down with. It took almost two weeks for the sneezing and heavy mucous production to abate for all … Continue reading →
It’s been so quiet here for the last two weeks that I can hear crickets chirping, but there’s a good reason: we broke out of our comfort zone in a BIG way – and then we all got sick. Boo. I’ll share more about our trip in a whole post of its … Continue reading →
Last time I updated, I said that we had started a green bean trial on Zac. It looked so promising that first day (after we convinced him to try one). Sadly, the green bean trial has flopped. The second day of the trial, I couldn’t get him to eat any … Continue reading →
On Thursday, August 13th, Darrel and I declared russet potatos a safe food for Zac. It’s his 18th safe food, and we couldn’t be happier! For his part, Zac adores potatos. He gets excited by mashed potatos, thrilled with hamburger hash, and ecstatic over French fries. For our part, life … Continue reading →
Do you know what I dislike? Working. More specifically, working so much that I’m exhausted while AT work, and so exhausted when I get home that I’m almost comatose for two days after returning. I took my computer to work with me last week, but, thanks to insane delays on … Continue reading →
Last week was brutal. I’m feeling very off my game right now, so this might not be the best writing I’ve ever done. Still, I wanted to give an update on the tomato trial, since I announced it last week. The tomato trial never happened. Zac helped us pick out tomatos … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!