A week and a half ago I got hurt at work. Again. Only this time it’s my right hand. You know, my dominant one. The one that allows me to do everything I do. I missed 5 days of work already this month and have to go to the doctor … Continue reading →
February was a dark time for me. The diagnosis of Autism really rocked my world. Not Jed’s diagnosis, but my unofficial diagnosis. Maybe that sounds strange, but it’s undeniable that I accepted Jed 100% as-is and had no fear whatsoever about his future, while simultaneously struggling to accept the same diagnosis … Continue reading →
Sharing about the autism diagnosis for my family was scary for me. I clearly had nothing to fear; I am completely blown away by the HUGE outpouring of support you all gave my family and myself! It’s going to take me days (maybe weeks!) to investigate all the books, websites, … Continue reading →
I hope you all had a really excellent Christmas! It’s almost the end of 2015, and I figured it would be good to do a little “year end recap” and update. For starters, I’ve been rather quiet on the blog front lately, but that’s actually because I’ve been writing furiously … Continue reading →
The terrible spinach reaction was Sunday night, and on Wednesday I was scheduled to return to work for a really difficult 3 day assignment. I still felt sore and achy and NOT my best, but I wasn’t bad enough I felt calling in sick was an option. Besides, thanks to vacation in … Continue reading →
It’s been a rough few weeks. In fact, there’s been so much happening that I can’t fit it all in one post, so this will be a nifty “ongoing storyline”. To begin, we do have some exciting news! October 30th, I arrived home from work in the early afternoon. As soon as I … Continue reading →
This. Is getting. Ridiculous. Last month, we all got sick after our Chicago trip. Jed and Darrel bounced back quickly, but Zac and I had a harder time recovering. We had barely begun feeling better when, about three weeks ago, we all got the stomach bug. Seriously? Apparently, every Fall … Continue reading →
Read Part 1, Part 2, and Part 3 first! Having spent $50 on the cab to get to the museum, we just didn’t have the funds available to take a cab back. Public transportation time! It really wasn’t that long of a walk to the train station, but after such … Continue reading →
Read part one and part two first. After we left the kids science exploration area, we decided to go to the Viking exhibition. The kids and I read the Magic Tree House series as bedtime stories, and one of the books covered Vikings. I thought this would be a great … Continue reading →
Read the first part here. Saturday morning dawned bright and early. Thanks to our late arrival, we were all sluggish and running late that morning. By the time we had dressed, cooked and eaten breakfast, gathered our lunch/beverages/school supplies, and ridden the shuttle van back to the airport, it was … Continue reading →
FPIES stands for Food Protein Induced Enterocolitis Syndrome. It is a rare food allergy that affects the gastrointestinal system. Reactions are delayed onset, usually 2-4 hours after a trigger food is eaten, but sometimes even longer than that.
Children with FPIES have symptoms that range from severe (violent vomiting to bile and hypovolemic shock) to mild (bloody diarrhea, sleep disturbances).
There is no test for FPIES. It is diagnosed by clinical observation and ruling out other possibilities.
There also are no tests to determine trigger foods. FPIES parents must simply feed their child a food, then wait to see if they react.
Find out more: Click on "FPIES Links" at the top!